IDF's SCID Compass Summit session, "A Parent's Journey with SCID" was presented by Anne Klein and Heather Smith on April 30, 2021.
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IDF's SCID Compass Summit session, "SCID Variants and the Irish Family" was presented by Stanton Goldman, MD, and Jolan Walter, MD, Ph.D. on April 30, 2021.
IDF's SCID Compass Summit session, "Thinking About the Future: Navigating Family Planning with SCID" was presented by Jamie Loey, MPH, and Natasha Bonhomme on April 29, 2021.
IDF's SCID Compass Summit session, "10+ Years of SCID Screening in New York: Evolution of Primary and Secondary Molecular Screening" was presented by Michele Caggana, Sc.D., FACMG, and Colleen Stevens, Ph.D. on April 29, 2021.
IDF's SCID Compass Summit session, "Coping with the Uncertainties of a SCID Diagnosis" was presented by Sara Andrews, MAT, MPH, RD, Barbara Biesecker, Ph.D., and Melissa Raspa, Ph.D. on April 29, 2021.
IDF's SCID Compass Summit session, "COVID-19, Vaccines, Treatments, and SCID" was presented by Harry Malech, MD on April 29, 2021.
IDF's SCID Compass Summit Welcome was presented by Alissa Creamer, IDF Director of Specialized Projects, Kathryn Stevens, IDF Interim CEO, Amy Walsh, IDF Board of Trustees Member, and Yvette Shorten, IDF Board of Trustees Member on April 29, 2021.
As part of the blood screening during a newborn screening at birth, doctors measure the T cell receptor excision circles or TRECs to test if they are within a normal or abnormal range. Abnormal TREC results could mean that a baby has Severe Combined Immunodeficiency or SCID, or it could be a different condition associated with the immune system. It is essential to learn about the medical steps parents should take if their child has an abnormal result and is diagnosed with low T cells. We will be discussing these medical steps further today with Dr. John Routes.
Listen to this SCID Compass Lunch & Learn featuring Christopher Dvorak, MD as he discusses monoclonal antibodies instead of chemotherapy prior to HSCT. This lunch and learn was presented on May 13, 2021. For more information about SCID Compass, please visit our website: www.scidcompass.org.
For at least a few months after a bone marrow transplant, babies must stay in the hospital, and sometimes in a nearby patient residence, in order to have easy access to medical care during recovery. It’s important for families to develop routines and maintain a support system during that time. This video describes life in post-treatment for families of children with SCID who have undergone a bone marrow transplant.