SCID Videos

Cindy Kisik, Caroline Nachem, and Audrey Duggan discuss SCID from the perspective of carriers in a panel moderated by Heather Smith. Click here to view a full PDF of the slides used in this presentation.

Brianne Miller, MPH, program manager of Newborn Screening Initiatives at Expecting Health, discusses navigating family planning with SCID. Click here to view a PDF of the presentation.

Listen to this SCID Compass Lunch & Learn featuring Scott Shone, Ph.D., HCLD (ABB) as he discusses a look at 4 years of universal screening for SCID in North Carolina. This lunch and learn was presented on February 9, 2022. For more information about SCID Compass, please visit our website: www.scidcompass.org.

Listen to this SCID Compass Lunch & Learn featuring Samantha Childs, MS, CCLS as she discusses supporting siblings of children with chronic illness. This lunch and learn was presented on February 2, 2022. For more information about SCID Compass, please visit our website: www.scidcompass.org.

Listen to this SCID Compass Lunch & Learn featuring Virdette L. Brumm, Ph.D., and Sharon A. Kidd, MPH, Ph.D. as they discuss neurodevelopmental outcomes following treatment for Severe Combined Immunodeficiency or SCID, a collaborative study by IDF and PIDTC. This lunch and learn was presented on November 10, 2021. For more information about SCID Compass, please visit our website: www.scidcompass.org.

IDF's Rare of the Rare session, "SCID Education Session: Post-Transplant Late Effects in Patients with SCID" was presented by Jennifer Heimall, MD on October 1, 2021.

Undergoing treatment for Severe Combined Immunodeficiency or SCID involves months in the hospital as well as months of isolation. Today, we will be speaking with Rachel Homer about how her family navigated isolation, especially during the pandemic.

Listen to this SCID Compass Lunch & Learn featuring Blachy J. Dávila Saldaña, MD as he discusses navigating Hematopoietic Stem Cell Transplantation (HSCT) during COVID-19 and beyond. This lunch and learn was presented on August 25, 2021. For more information about SCID Compass, please visit our website: www.scidcompass.org.

IDF 2021 PI Conference Session, "Rare of the Rare Quick Clip: Severe Combined Immunodeficiency (SCID): Then and Now" was presented by Rebecca Buckley, MD on June 24, 2021. This quick clip is a preview of what's to come during Rare of the Rare on October 1-2, 2021.

IDF 2021 PI Conference Diagnosis-Specific Education Session, "Severe Combined Immunodeficiency (SCID)" was presented by Donald Kohn, MD, and Jennifer Puck, MD on June 25, 2021.