Listen to the SCID Compass Lunch & Learn, an IDF Forum, as we discuss Hematopoietic Stem Cell Transplantation (HSCT) and Bone Marrow Transplant (BMT) as Treatment Options for Severe Combined Immunodeficiency (SCID). This lunch and learn was presented on October 14, 2020. For more information about SCID Compass, please visit our website: www.scidcompass.org.
You are here
When a baby has completed treatment for SCID, leaving the hospital can be stressful for families. This video suggests steps parents can take to feel more confident about transitioning home with their baby.
IDF's Rare of the Rare session, "Diagnosis Specific: Severe Combined Immunodeficiency (SCID): Where Are We and Where Are We Going?" was presented by Mort Cowan, MD on September 26, 2020.
IDF SCID Compass Lunch & Learn, an IDF Forum, was held for individuals and family members impacted by Severe Combined Immunodeficiency (SCID) on June 23, 2020. For more information about SCID Compass, please visit our website: www.scidcompass.org.
Once your child has progressed through treatment and recovery and has a functioning immune system, it’s time to navigate the next steps in the SCID journey. Learn how regular communication with your medical team, as well as with educators in the school environment, assists in continued health for your child.
The Duggan family celebrates every victory, even the small ones, throughout their SCID journey. We all have a story to tell. Let IDF tell yours. Email us at firstname.lastname@example.org to schedule an interview.
Erica Billy and her husband Terrance George struggled for years with their daughter Ava's Severe Combined Immune Deficiency (SCID) diagnosis. Watch as Erica Billy shares the story of Ava’s harrowing journey through SCID diagnosis and treatment, and her slow but sure recovery, a story which served as the opening portion for IDF’s Virtual SCID Summit held April 1, 2020.
SCID Compass is an educational program of the Immune Deficiency Foundation, funded through a federal grant. SCID Compass provides information on SCID diagnosis, treatment, and support through: www.scidcompass.org, printed materials, and links to SCID communities through social media and mailing lists.
Aprenda sobre la campaña década-larga acertada de la IDF para la evaluación universal de SCID del recién nacido a través del país, así como el trabajo actual de la IDF para asegurarse de que cada familia que se enfrenta a un diagnosis de SCID tiene acceso a recursos, atencíon y el apoyo que necesita y merece.