SCID Compass Toolkit
Available in 12 languages, the toolkit includes the information on this site, factsheets, & a family planning guide.
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Understand SCID

Go here if you're just getting started.
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Explore Treatment Options

Go here to learn more about treatment options.
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Navigate Hospital Stay

Find out what to expect as your child undergoes treatment.
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Cope with Post-Treatment

Find out what's next before heading home.
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Return Home

Learn what has to be done when caring for a child with SCID.
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Planning for the Future

Find out what to expect moving forward.
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SCID Related Videos
Lunch & Learn: What is Chimerism?
Lunch & Learn: The Importance of Long-Term Follow-Up
Organ Function and Long-Term Outcomes Following Hemopoietic Stem Cell Transplants for SCID
SCID Compass Lunch and Learn: An ADA-SCID Gene Therapy Update
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SCID Recent Articles

May 05, 2023

Paper explores implementation of newborn screening for SCID and other conditions

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April 21, 2023

Monitoring chimerism after BMT is critical to good health

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March 31, 2023

SCID research paper explores types of uncertainty faced by parents

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About SCID Compass

A program of the Immune Deficiency Foundation, SCID Compass is funded through a federal grant from the Health Resources and Services Administration, an agency of the U.S. Department of Health and Human Services. SCID Compass is a program designed to guide parents of infants diagnosed with severe combined immunodeficiency (SCID), people living with SCID, and the medical community through the journey of learning about this rare life-threatening medical disorder and finding support to navigate the lifelong health challenges.

Click here to learn more