SCID Compass Toolkit
Available in 12 languages, the toolkit includes the information on this site, factsheets, & a family planning guide.
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Understand SCID

Go here if you're just getting started.
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Explore Treatment Options

Go here to learn more about treatment options.
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Navigate Hospital Stay

Find out what to expect as your child undergoes treatment.
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Cope with Post-Treatment

Find out what's next before heading home.
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Return Home

Learn what has to be done when caring for a child with SCID.
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Planning for the Future

Find out what to expect moving forward.
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SCID Related Videos
Lunch and Learn: Breastfeeding and CMV
Lunch and Learn: APHL Update
Lunch & Learn: Transitioning from pediatric to adult care
Lunch & Learn: What is Chimerism?
See all SCID Videos

SCID Recent Articles

September 20, 2023

Carol Ann Demaret advocated for SCID—and IDF

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July 13, 2023

Study shows newborn screening improved SCID survival rates

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June 29, 2023

Teach teens with PI how to transition their healthcare

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About SCID Compass

A program of the Immune Deficiency Foundation, SCID Compass is designed to guide parents of infants diagnosed with severe combined immunodeficiency (SCID), people living with SCID, and the medical community through the journey of learning about this rare life-threatening medical disorder and finding support to navigate the lifelong health challenges.

Click here to learn more