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January 18, 2022
Advocacy, Awareness

Dr. Rochester named IDF's health equity medical advisor

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Dr. Nicole Rochester’s father struggled with many health problems including dementia, heart disease, diabetes, kidney disease, and obesity. When she and her two older sisters began caring for him and she found herself in charge of his medical care, she realized just how muddled management of his diseases had become.

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January 14, 2022
COVID-19, In the News

Update - AstraZeneca's Evusheld authorized as COVID-19 preventative for immunocompromised

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Jan. 14, 2022 - Evusheld updates: U.S. government purchases additional doses, NIH releases treatment guidelines, and additional data confirm activity against the Omicron variant; update to Dec. 9, 2021 article.

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January 13, 2022
Education, PI

Breaking Down Common Terms in the Immune Deficiency Space

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Immunocompromised, immunosuppressed, primary immunodeficiency, secondary immunodeficiency, and inborn errors of immunity. What do all these terms mean and how do they relate to each other?

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January 07, 2022
Living with CGD

Drug prevents major bone marrow transplant complication

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The Food and Drug Administration (FDA) recently approved Orencia for use in the prevention of graft versus host disease (GVHD).

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January 04, 2022
Awareness

'Cleaning Lady' raises PI awareness, but also falls short

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“The Cleaning Lady,” a new television drama, spreads much-needed awareness about persons with rare primary immunodeficiencies, but ultimately falls prey to tropes that don't accurately depict families dealing with such complicated diagnoses.

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