Remember the Girls empowers women affected by X-linked conditions
Remember the Girls provides education on X-linked conditions, family planning resources, personal stories, access to research studies, and an online group where women can share their experiences.
Read MoreLeniolisib approved for treating ultrarare APDS 1 and 2
Leniolisib is the first FDA-approved treatment for activated PI3K delta syndrome (APDS) 1 and 2 and directly inhibits the overactive enzyme that causes symptoms in this ultrarare primary immunodeficiency.
Read MoreHealing the trauma of a life-changing PI diagnosis
Psychologist Dr. Sacha McBain provides insight into how PI causes medical trauma and offers solutions for improving mental health.
Read MoreWhy and how to collect a family medical history
Since primary immunodeficiencies (PIs) are inherited, knowing whether family members have a PI, a related condition, or symptoms of undiagnosed PI, can give you and your healthcare provider important context for your health.
Read MorePatient-informed continuing education course on PI wins award
AAAAI, IDF, and AXDEV Group, Inc. have won an award from the Alliance for Continuing Education in the Health Professions for a course on primary immunodeficiency to address gaps in care identified by a patient survey.
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