Update - Monkeypox may be a threat to immunocompromised on current trajectory
What is monkeypox and how concerned about the current outbreak should you be if you are immunocompromised? U.S. and international bodies have declared a public health emergency to try to get the situation under control.
Read MoreNew diagnostic code for ultrarare primary immunodeficiency promises multiple benefits
A new ICD-10 code for an ultrarare condition called activated PI3K delta syndrome (APDS; also known as PASLI disease) could mean better data for researchers and easier navigation of the medical system for patients and their caregivers.
Read MoreAddressing caregivers’ mental health is key after SCID diagnosis
Three parents share their experiences in a new video emphasizing the importance of caregivers addressing their mental health after a child is diagnosed with severe combined immunodeficiency (SCID).
Read MoreCGDAA empowers, connects CGD community
The Chronic Granulomatous Disease Association of America (CGDAA) advocates for patients, carriers, and families by providing clear, accurate, and independent news information about CGD and CGD research.
Read MoreDonor Spotlight: Nupur Murthy
When IDF community member Nupur Murthy first received a diagnosis of Hemophagocytic
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