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March 30, 2023
Living with CGD

Remember the Girls empowers women affected by X-linked conditions

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Remember the Girls provides education on X-linked conditions, family planning resources, personal stories, access to research studies, and an online group where women can share their experiences.

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March 28, 2023
Research

Leniolisib approved for treating ultrarare APDS 1 and 2

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Leniolisib is the first FDA-approved treatment for activated PI3K delta syndrome (APDS) 1 and 2 and directly inhibits the overactive enzyme that causes symptoms in this ultrarare primary immunodeficiency.

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March 22, 2023
Awareness, Community

Healing the trauma of a life-changing PI diagnosis

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Psychologist Dr. Sacha McBain provides insight into how PI causes medical trauma and offers solutions for improving mental health.

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March 16, 2023
Education

Why and how to collect a family medical history

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Since primary immunodeficiencies (PIs) are inherited, knowing whether family members have a PI, a related condition, or symptoms of undiagnosed PI, can give you and your healthcare provider important context for your health.

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March 02, 2023
Research

Patient-informed continuing education course on PI wins award

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AAAAI, IDF, and AXDEV Group, Inc. have won an award from the Alliance for Continuing Education in the Health Professions for a course on primary immunodeficiency to address gaps in care identified by a patient survey.

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