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SCID News

November 16, 2022
SCID, SCID Compass

SCID uncertainty paper examines how parents cope

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Parents of children with severe combined immunodeficiency (SCID) exhibit resiliency as they learn to overcome the stress associated with a life-threatening diagnosis. They rely heavily on support from healthcare providers, family, friends, and parents in the SCID community and demonstrate their own ability to create coping strategies. Such is

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October 13, 2022
SCID, SCID Compass

ADA-SCID gene therapy trials to resume in 2023

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Parents of children with adenosine deaminase (ADA) deficient severe combined immunodeficiency (SCID) learned that after several years of delay, clinical trials to treat ADA-SCID using gene therapy will resume in 2023. Dr. Donald Kohn, University of California Los Angeles (UCLA) Department of Microbiology, Immunology, and Molecular Genetics

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September 30, 2022
SCID, SCID Compass

B cells slow to replenish after BMT for SCID

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Some children with severe combined immunodeficiency (SCID) who are treated with bone marrow transplant (BMT) require immunoglobulin infusions for months, sometimes years, after the transplant. But why? And what can parents expect as their child recovers from the transplant and builds a new immune system from donor cells? Dr. Manish Butte Two

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August 30, 2022
SCID, SCID Compass

UCLA researcher to update status of ADA-SCID gene therapy trials

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Parents of children with adenosine deaminase severe combined immunodeficiency (ADA-SCID) anxiously await the restart of gene therapy clinical trials at the University of California of Los Angeles (UCLA), and an upcoming SCID Compass Lunch & Learn offers them an update. During the Lunch & Learn, UCLA Professor of Microbiology, Immunology

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August 01, 2022
SCID Compass

Addressing caregivers’ mental health is key after SCID diagnosis

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When doctors diagnosed TJ and Audrey Duggan’s newborn son Dean with X-linked severe combined immunodeficiency (SCID), a life-threatening primary immunodeficiency (PI), TJ Duggan said he shifted into “go-mode” focusing entirely on Dean’s health and finding the best treatment for him. Duggan pushed any stress and fear he felt to the back of his mind

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