After a baby is born with severe combined immunodeficiency (SCID), parents may be unsure how to proceed with family planning. They may have questions, such as: Will our other children have SCID? Is having more children the right decision for us? Who can we turn to for guidance on these topics? A video created for IDF’s SCID Compass program by
Read MoreUpdate: Families of babies born with Artemis-deficient severe combined immunodeficiency (SCID) who don’t respond well to standard bone marrow transplant (BMT) treatment may consider pursuing a more effective treatment for their infants – gene therapy. A recently published study by Dr. Morton Cowan, a renowned SCID specialist and immunologist at
Read MoreWhen a baby or young child undergoes a bone marrow transplant (BMT) to treat severe combined immunodeficiency (SCID), the treatment may resolve the condition; however, it can also lead to health problems years afterward. In a recent SCID Compass Lunch & Learn, Dr. Ami Shah, clinical professor of pediatrics at Stanford University and pediatric
Read MoreParents of children with severe combined immunodeficiency (SCID) exhibit resiliency as they learn to overcome the stress associated with a life-threatening diagnosis. They rely heavily on support from healthcare providers, family, friends, and parents in the SCID community and demonstrate their own ability to create coping strategies. Such is
Read MoreParents of children with adenosine deaminase (ADA) deficient severe combined immunodeficiency (SCID) learned that after several years of delay, clinical trials to treat ADA-SCID using gene therapy will resume in 2023. Dr. Donald Kohn, University of California Los Angeles (UCLA) Department of Microbiology, Immunology, and Molecular Genetics
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