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SCID News

June 15, 2021
SCID, SCID Compass

Update on Gene Therapy for ADA-SCID

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A group of parents whose infants and toddlers are diagnosed with ADA-SCID banded together and aided in changing the course of gene therapy treatment for their children.   With support from SCID Angels for Life, the parents urged Orchard Therapeutics, the company supervising the ADA-SCID gene therapy treatment clinical trials, to turn the

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June 10, 2021
SCID, SCID Compass

Watch the SCID Summit Sessions

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If you missed the 2021 SCID Compass Summit held in April, you can still take advantage of the information shared during the event, as presentations are now live on the SCID Compass website.   Presented as a virtual event, the SCID Compass Summit highlighted the current state of SCID in the U.S. and the work being done to support those who are

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May 31, 2021
SCID, SCID Compass

Researchers Study Monoclonal Antibodies in SCID Treatment

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When a child with severe combined immunodeficiency receives a bone marrow transplant, or gene therapy, as part of the procedure to restore his or her missing immune system, most of the time, doctors administer chemotherapy.   The chemotherapy – referred to as “conditioning” – removes the patient’s own marrow stem cells to make space for the new

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May 17, 2021
SCID, SCID Compass

SCID Compass Offers Caregiver Support Groups

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Caring for a child with severe combined immunodeficiency (SCID) is a stressful journey. Parents must navigate complicated medical procedures, social isolation, strained relationships, disruptions in work, and financial burdens all while ensuring successful treatment and recovery for their child. But, caregivers don’t have to go it alone.   As

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May 11, 2021
SCID, SCID Compass

Gene Therapy for ADA-SCID Shows Promise

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Research findings recently published in the New England Journal of Medicine provide hope that gene therapy may one day be an accepted treatment for ADA-SCID instead of an experimental one.   Babies born with severe combined immunodeficiency, or SCID, have no immune system and die from infection within the first year or two of life unless they

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