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SCID News

October 06, 2021
SCID, SCID Compass

Mom shares SCID isolation story

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Lameria GishieShortly after doctors diagnosed Rachel Homer’s infant daughter Lameria Gishie with severe combined immunodeficiency in July 2019, mother and baby flew over 800 miles from their home on the Navajo Nation reservation in Arizona to the University of California San Francisco Medical Center for treatment. The tremendous distance

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September 30, 2021
SCID, SCID Compass

SCID mandated in PA newborn screenings

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There is no more fitting way to celebrate September as National Newborn Screening Awareness Month than to acknowledge the progress made in Pennsylvania this past year. In fall 2020, the Pennsylvania legislature passed a bill mandating that hospitals, birthing centers, and midwives test every newborn baby for all 61 conditions on the Recommended

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September 28, 2021
SCID, SCID Compass

Rare of the Rare examines SCID treatment long-term

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While a bone marrow transplant is a lifesaving procedure for babies born with severe combined immunodeficiency (SCID), the treatment is not without its complications. Those complications, which can be lifelong, are the subject of a presentation by Dr. Jennifer Heimall at this year’s IDF Rare of the Rare Summit. Set for Oct. 1 and 2, the Rare of

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September 17, 2021
SCID, SCID Compass

Back-to-School Q&A Focuses on SCID

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With the return of students to school, parents of children treated for severe combined immunodeficiency (SCID) have lots of questions concerning how to protect their children during the pandemic, but also provide them with opportunities to see classmates and teachers face-to-face. Below are the questions they’ve posed and the answers provided by

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August 31, 2021
SCID, SCID Compass

Pandemic Doesn't Delay SCID Treatments

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While the pandemic has prompted some changes in how babies with SCID are cared for within the hospital setting, it hasn’t affected the timing of treatments for the babies at one of the top-ranked pediatric bone marrow transplant centers. Dr. Blachy J. Dávila Saldaña, director of the Combined Immunodeficiency BMT Clinic at Children’s National

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