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SCID News

November 30, 2021
SCID, SCID Compass

SCID Compass creates fact sheet for providers

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Knowledge of severe combined immunodeficiency (SCID) is sometimes lacking in the medical community. That’s because SCID is rare, present in about 1 out of 58,000 births, and healthcare providers may not be familiar with the condition. Now, thanks to SCID Compass, pediatricians and primary care physicians can access a SCID provider fact sheet.

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November 19, 2021
SCID, SCID Compass

SCID Compass provides family planning guide

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Deciding to expand a family is a personal decision, and for parents of children with severe combined immunodeficiency (SCID), it can be a difficult one filled with many questions. Will my other children have SCID? What are my options if we decide to have more children? Is choosing not to have more children the best path forward for us? To

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November 18, 2021
SCID, SCID Compass

SCID Compass site available in several languages

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On average, specialists diagnose about 76 cases of severe combined immunodeficiency (SCID) each year in the United States. SCID is a rare, life-threatening primary immunodeficiency, which is usually fatal unless treated within the first year. A SCID diagnosis is overwhelming to parents, and families often struggle to find comprehensive

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November 16, 2021
SCID Compass

Date set for 2022 SCID Compass Summit

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The fourth annual SCID Compass Summit is set for June 23-24, 2022. The two-day event will be virtual and offer an opportunity for connection, learning, and sharing of ideas about severe combined immunodeficiency.  Stay tuned for an announcement of speakers and topics and registration information in early 2022. What is SCID? Severe Combined

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November 08, 2021
SCID, SCID Compass

SCID experts discuss future of treatments

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During the 2021 IDF National Conference in June, two Severe Combined Immunodeficiency (SCID) experts teamed up to present a detailed update on the landscape of SCID. Dr. Donald Kohn from the University of California Los Angeles and Dr. Jennifer Puck from the University of California San Francisco discussed topics including SCID definition,

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