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SCID News

February 24, 2023
SCID, SCID Compass

SCID Compass video guides parents through family planning

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After a baby is born with severe combined immunodeficiency (SCID), parents may be unsure how to proceed with family planning. They may have questions, such as: Will our other children have SCID? Is having more children the right decision for us? Who can we turn to for guidance on these topics? A video created for IDF’s SCID Compass program by

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February 01, 2023
SCID, SCID Compass

Study shows gene therapy is effective for Artemis-SCID

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Update: Families of babies born with Artemis-deficient severe combined immunodeficiency (SCID) who don’t respond well to standard bone marrow transplant (BMT) treatment may consider pursuing a more effective treatment for their infants – gene therapy. A recently published study by Dr. Morton Cowan, a renowned SCID specialist and immunologist at

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December 15, 2022
SCID, SCID Compass

SCID bone marrow transplant can result in chronic long-term health effects

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When a baby or young child undergoes a bone marrow transplant (BMT) to treat severe combined immunodeficiency (SCID), the treatment may resolve the condition; however, it can also lead to health problems years afterward. In a recent SCID Compass Lunch & Learn, Dr. Ami Shah, clinical professor of pediatrics at Stanford University and pediatric

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November 16, 2022
SCID, SCID Compass

SCID uncertainty paper examines how parents cope

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Parents of children with severe combined immunodeficiency (SCID) exhibit resiliency as they learn to overcome the stress associated with a life-threatening diagnosis. They rely heavily on support from healthcare providers, family, friends, and parents in the SCID community and demonstrate their own ability to create coping strategies. Such is

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October 13, 2022
SCID, SCID Compass

ADA-SCID gene therapy trials to resume in 2023

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Parents of children with adenosine deaminase (ADA) deficient severe combined immunodeficiency (SCID) learned that after several years of delay, clinical trials to treat ADA-SCID using gene therapy will resume in 2023. Dr. Donald Kohn, University of California Los Angeles (UCLA) Department of Microbiology, Immunology, and Molecular Genetics

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