Where are you in your SCID journey?
Wherever you are on your journey with SCID, use the links below to find the information and support you need.
SCID Support Groups
Register now and join other SCID families for our weekly support groups.
SCID Compass Events
Learn the latest about diagnosis and treatment, and network with others.

Understand SCID

Go here if you're just getting started.

Explore Treatment Options

Go here to learn more about treatment options.

Navigate Hospital Stay

Find out what to expect as your child undergoes treatment.

Cope with Post-Treatment

Find out what's next before heading home.

Return Home

Learn what has to be done when caring for a child with SCID.

Planning for the Future

Find out what to expect moving forward.

SCID Recent Articles

About SCID Compass

A program of the Immune Deficiency Foundation, SCID Compass is funded through a federal grant from the Health Resources and Services Administration, an agency of the U.S. Department of Health and Human Services. SCID Compass is a program designed to guide parents of infants diagnosed with severe combined immunodeficiency (SCID), people living with SCID, and the medical community through the journey of learning about this rare life-threatening medical disorder and finding support to navigate the lifelong health challenges.