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Agenda set for July Teen and Young Adult Escape

The agenda is set for the IDF Teen & Young Adult Escape, an opportunity for teens ages 13-17 and young adults ages 18-25 to come together and meet others who understand what it’s like to be a young person with PI. Set for July 22-24 at the Chicago Marriott Oakbrook in Chicago,  the Teen & Young Adult Escape kicks off on Friday, July 22 at 5:30 p.m. with mocktails and a karaoke pizza party and concludes on Sunday, July 24 at 1 p.m. Registration for the event is closed.

Congenital athymia diagnosis begins at newborn screening

Learn how congenital athymia is diagnosed and treated, and what causes this rare immunodeficiency by tuning into "Congenital Athymia 101," an IDF forum presented by Dr. Elena Hsieh, University of Colorado School of Medicine Associate Professor of Pediatrics, Section of Allergy and Immunology, and Department of Immunology and Microbiology Director for the Jeffrey Modell Center for Primary Immunodeficiencies.

 

The Immune Deficiency Foundation (IDF) will host Dr. Elena Hsieh from the Children’s Hospital Colorado for a discussion about congenital athymia, an ultra-rare condition in which a baby is born with no thymus and is unable to produce T cells, making the baby vulnerable to life-threatening infections.

Study finds CGD carriers exhibit symptoms of disorder

A chronic granulomatous disease (CGD) carrier study that involved the Chronic Granulomatous Disease Association of America (CGDAA) and the Primary Immune Deficiency Treatment Consortium (PIDTC) shows that female CGD carriers suffer from the same symptoms as those diagnosed with the disorder and recommends that CGD carriers seek diagnosis and treatment through specialists such as immunologists.

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