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The medical field has made significant progress in both diagnosing and treating people living with SCID. Scientists continue to explore improved treatments.

Now that there is testing for SCID during newborn screening in all 50 states, as well as Washington, D.C. and Puerto Rico, the condition is being identified earlier. Early detection is a lifesaving prospect for these children.

If children are treated within the first few months of age, and do not have infections, the long-term survival is greater than 90%. Early diagnosis, prevention of infection, and early treatment are key factors for the best outcomes in a child with SCID.