For at least a few months after a bone marrow transplant, babies must stay in the hospital, and sometimes in a nearby patient residence, in order to have easy access to medical care during recovery. It’s important for families to develop routines and maintain a support system during that time. This video describes life in post-treatment for families of children with SCID who have undergone a bone marrow transplant.
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SCID Animated Series
Finding out your child has SCID is scary, but with the right information and support, your journey with SCID can be manageable. In this video, learn how newborn screening is essential to SCID diagnosis and isolation keeps a baby safe from life-threatening infection.
Families, with guidance from doctors, must choose the best treatment option for their baby with SCID. The standard treatment is bone marrow transplant, but some forms of SCID can be treated with gene therapy in clinical trials or enzyme replacement therapy.
Bone marrow transplant is often the best treatment for a child with severe combined immunodeficiency or SCID. It’s important for families to gain an understanding of the transplant process. This video outlines questions families should ask doctors, describes how a donor is chosen, and provides an overview of transplant day.
When a baby has completed treatment for SCID, leaving the hospital can be stressful for families. This video suggests steps parents can take to feel more confident about transitioning home with their baby.
Once your child has progressed through treatment and recovery and has a functioning immune system, it’s time to navigate the next steps in the SCID journey. Learn how regular communication with your medical team, as well as with educators in the school environment, assists in continued health for your child.