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Expectations & Experiences: Parent & Patient Perspectives

Recently published in the August 2021 Issue of Clinical Immunology is an article entitled "Expectations and experience: Parent and patient perspectives regarding treatment for Severe Combined Immunodeficiency (SCID)", co-authored by Heather Smith, Christopher Scalchunes, Morton J.Cowan, JenniferPuck, and JenniferHeimall. The survey was designed and distributed to families of individuals with SCID. Among the questions were SCID genotype and treatment, individual recollections of pre-treatment counseling, and present clinical status.

 

Of the 151 surveys analyzed:

SCID Compass Lunch & Learn: Navigating HSCT during COVID-19 and Beyond

Join us for a SCID Compass Lunch & Learn to explore how the pediatric bone marrow transplant experience has been affected by the COVID-19 pandemic, lessons learned, and special considerations as we emerge post-pandemic. 

Wednesday, August 25, 2021

10:00 AM – 11:00 AM PT | 11:00 – 12:00 AM MT | 12:00 PM – 1:00 PM CT | 1:00 – 2:00 PM ET 

 

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