SCID Compass

APHL performed a retrospective analysis of the implementation of newborn screening for seven conditions, including SCID, on the Recommended Uniform Screening Panel.

May 11, 2023, marks the end of the COVID-19 public health emergency (PHE) in the U.S. The biggest change will be costs for at-home COVID-19 tests for those with private insurance or on Medicare.

When Tessa Decker listened to the announcer proclaim finalists in the pole fitness competition at the Arnold Sports Festival, she didn’t hear her name in fifth, fourth, or third place, so she figured she placed lower—that is until the announcer declared her the winner.

The cost of immunoglobulin replacement therapy can be prohibitive for individuals with PI under age 65 who are disabled.

Patients with severe combined immunodeficiency (SCID) treated with bone marrow transplant (BMT) should undergo close monitoring of their chimerism to ensure they are maintaining a healthy immune system.

FDA and CDC have revised COVID-19 vaccine authorizations and recommendations, removing monovalent mRNA vaccines from use and allowing older adults and the immunocompromised to receive an additional bivalent booster. 

When a baby is diagnosed with severe combined immunodeficiency (SCID), parents must cope with constant uncertainty related to diagnosis, treatment, and recovery, and it’s imperative that providers educate parents every step of the way.

Remember The Girls provides education on X-linked conditions, family planning resources, personal stories, access to research studies, and an online group where women can share their experiences.

Psychologist Dr. Sacha McBain provides insight into how PI causes medical trauma and offers solutions for improving mental health.