This year's PI Conference features a candid conversation between a group of people about what it's like living as an immunocompromised person and how that experience differs or is the same among conditions.
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As of September 19, 2022, the United States District Court has granted a preliminary injunction that prevents U.S. Customs and Border Protection (CBP) from enforcing a ban that affects Mexican nationals entering the United States with B1/B2 visas to donate plasma. Lifting the restrictions on donors from Mexico will help increase donation levels for the time being, but this is an issue we continue to track closely.
The Immune Deficiency Foundation (IDF) joined forces with AstraZeneca for a new education campaign, Up the Antibodies, that profiles the journeys of Jeff Bridges, Emily Gordon, and Kumail Nanjiani, among others, to raise awareness of the continued risk of COVID-19 to immunocompromised populations.
After a surge of COVID-19 cases in the winter, the number of cases in the United States is lower – but that doesn’t mean it’s time to let your guard down. With fall approaching and indoor activities once again picking up, pay close attention to transmission in your local community and pursue as many defenses as you can against the virus.
Diagnosed with chronic granulomatous disease as infants, brothers Jason Chew and Patrick Chew supported each other throughout their lives.
UCLA researcher Dr. Donald Kohn will give an update on the status of the ADA-SCID gene therapy clinical trials.
Advocate for your child with a primary immunodeficiency diagnosis in the school setting to ensure they receive the support they need in academic, extracurricular, and social endeavors.
Learn ways you can take charge of your PI diagnosis and coordinate care in the areas of record-keeping, Ig therapy, and provider communication.
Navigating health benefits, whether it’s private insurance or government-funded programs, can be confusing and frustrating. Missing one small detail could result in delayed care and higher costs.
Evangelina Padilla, born in with ADA-SCID in 2012, was treated with clinical trial gene therapy and today is a healthy, active 10-year-old.