You are here

SCID News

SCID News

August 30, 2022
SCID, SCID Compass

UCLA researcher to update status of ADA-SCID gene therapy trials

POSTED BY:

Parents of children with adenosine deaminase severe combined immunodeficiency (ADA-SCID) anxiously await the restart of gene therapy clinical trials at the University of California of Los Angeles (UCLA), and an upcoming SCID Compass Lunch & Learn offers them an update. During the Lunch & Learn, UCLA Professor of Microbiology, Immunology

Read More
August 01, 2022
SCID Compass

Addressing caregivers’ mental health is key after SCID diagnosis

POSTED BY:

When doctors diagnosed TJ and Audrey Duggan’s newborn son Dean with X-linked severe combined immunodeficiency (SCID), a life-threatening primary immunodeficiency (PI), TJ Duggan said he shifted into “go-mode” focusing entirely on Dean’s health and finding the best treatment for him. Duggan pushed any stress and fear he felt to the back of his mind

Read More
July 15, 2022
SCID, SCID Compass

Evangelina, born with ADA-SCID, thrives after gene therapy

POSTED BY:

Alysia Padillo-Vaccaro learned her newborn daughter Evangelina Vaccaro had severe combined immunodeficiency (SCID) just six weeks after Evangelina’s birth, and like most parents of children with SCID, Alysia and her husband Christian felt devastated by the diagnosis. But Evangelina had a twin – Annabella – and the couple was determined to mark the

Read More
July 14, 2022
SCID, SCID Compass

SCID Family Day provides outreach to Amish community

POSTED BY:

  After a delay of more than two years because of the pandemic, SCID Compass representatives and medical professionals met with members of the Amish community in person to spread awareness about the importance of diagnosing and treating severe combined immunodeficiency (SCID). SCID, a life-threatening primary immunodeficiency in which a baby is

Read More
June 30, 2022
SCID, SCID Compass

Congenital athymia diagnosis begins at newborn screening

POSTED BY:

Update While babies born with either congenital athymia or severe combined immunodeficiency (SCID) both lack T cells, the causes of the two primary immunodeficiency disorders differ significantly, so it’s important to determine the correct diagnosis in order to move forward with the appropriate treatment. This insight into congenital athymia is

Read More