Looking for the latest information pertaining to severe combined immunodeficiency (SCID)? Then register for the upcoming fourth annual SCID Compass Summit. Set for June 23-24, from 11 a.m. to 3 p.m. each day, this two-day virtual event is free and offers an opportunity for connection, learning, and sharing of ideas about SCID.

The Immune Deficiency Foundation’s (IDF) SCID Compass program invites stakeholders from across the United States and around the world – including patients; parents/caregivers; physicians, nurse practitioners, and other healthcare and laboratory professionals; and industry leaders – to participate in the Summit.

“The great thing about the SCID Compass Summit is that it’s a coming together of a wide array of people from the SCID community who want to accomplish the same objective – to join in a robust discussion about SCID resources, support, and education,” said Alissa Creamer, IDF’s director of community services.

“In fact, the presentations that take place during the Summit actually become resources themselves that we house on the SCID Compass website after the Summit is over.”

Participants may attend all or a select few of the presentations at the Summit. Topics on the agenda for this year’s SCID Compass Summit are:

• Mental health and coping with a SCID diagnosis

• Improving how SCID is diagnosed in premature infants

• SCID in the Irish Traveller community

• Neurodevelopmental outcomes following SCID treatment

• Long-term follow-up for SCID

• Family planning considerations for SCID

• A parent’s personal journey with SCID

• SCID Compass resource overview

Presenters include allergists/immunologists, genetic counselors, and mental health specialists, along with representatives from Research Triangle Institute (RTI) International, the Association of Public Health Laboratories (APHL), Genetic Alliance’s Expecting Health, and SCID Angels for Life.

The SCID Compass program is supported by a grant from the Health Resources Services Administration (HRSA) and its purpose is to provide a vital link to information about SCID, a rare primary immunodeficiency that is typically fatal if not identified and treated before the age of 2.

Register now.