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SCID Compass overview video:


About SCID Compass

SCID Compass offers educational materials, access to family networking, and advocacy on a national level, with the goal of improving outcomes for children born with SCID.

SCID is a genetic disorder in which an infant is born without a functioning immune system. The immune system is unable to protect the infant against infection. As a result, a child with SCID has recurrent and persistent illnesses that are life-threatening.

SCID Compass provides information on SCID diagnosis, treatment, and support through:, printed materials, and links to SCID communities through social media and mailing lists.

This resource, a program of the Immune Deficiency Foundation, was developed by funding from the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number SC1MC31881 for $6,000,000.